The Palladino Pack…

Today, at 1:47p, we will mark Frankie’s DIAVERSARY.  Three years of living with Type 1 Diabetes. It is not just Frankie’s Diaversary. It is Rachel’s, Mom & Dad’s, Grandma & Grandpa’s, aunts, uncles, cousins, Frankie’s friends, their parents, his coaches, his teachers, our Upstate T1D group, his scout leaders, his school nurse, our church-St. Ann’s, Immediate Medical Care of Manlius, our friends at the ADA and JDRF, his principal, his doctor, Pepsi Co., our neighbors— all have had diabetes with Frankie since August 23, 2010 at 1:47pm. We are THE PALLADINO PACK! Today we all celebrate! 1005560_318286301638967_1073700053_n

It takes a TEAM, educated about diabetes, to keep a child with type 1 diabetes safe and help them handle their medical needs. So many variables can cause fluctuation in glucose levels—some variables a child will not recognize until the fluctuation becomes an emergency. So the TEAM needs to be there-at all times-and do the recognizing for the child. Growth spurts, puberty, the weather, excitement, a common cold, stress, fear, activity, and more-could land Frankie in the hospital. There must be a TEAM on alert-all day, every day. We are BLESSED with an AWESOME team.

965641_305918999542364_2076811725_oOUR TEAM! WE ARE GRATEFUL!

Thank you for being on this wild ride called Type 1, hanging on with us at every turn. Thanks for sharing the tears and the fears, and the laughs (yes-you have to find the laughs—BOLUS!). THANK YOU for not being scared to take on the role of caregiver. Having Frankie for sleepovers, parties, and taking him to the movies. For learning how to give shots, test BG levels, and inject glucagon. Thank you for encouraging him to ride his bike2013 tour de cure 180
for 15 miles in the Tour (even though YOU caused some gray hairs on my head!) Thank you for attending ‘What’s Your Type?’ events and joining us on our quest to raise awareness! Thank You for letting Mom and Dad leave their jobs –no questions asked-just GO—when the phone rings and Frankie needs us. Thank you for being a support to Rachel—taking her to SeaBreeze, horse rides, overnights and outings.  Thank you for the late night phone calls, the meals, the hugs.

Our #1 goal as parents is to make sure our kids are safe-at all times. Since diabetes—our second #1 goal is to make diabetes a ‘matter of course’ in their lives. Easier said than done, but looking back at the last 3 years-Frankie and Rachel BELIEVE all is possible- they face their fears, dream dreams, cry when they need too, and find humor in a disease that is humorless. They hold hands and jump willingly into the unknown. How do they do this? Through the POWER of the TEAM! They know ALL OF YOU are 556_205458396255092_340887457_nwatching out for them, cheering them on, and you have their back.

Happy Diaversary Palladino Pack!

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IF I HAD A DIME…

If I had a dime for every piece of advice received , by well meaning individuals, about how to ‘handle’ Frankie’s diabetes I would not lose sleep over how I was going to pay for insulin and medical supplies.

I know- I knew absolutely nothing about diabetes before August 23, 2010 at 1:47pm-the time of diagnosis—but I venture to say, I would not have added my two cents about it back then either. Maybe I would have—shame on me.

Living with diabetes is hard. Every day I paste a smile on my face & pretend this disease can be ‘controlled’ or ‘managed.’ Truth—it’s a crap shoot. There may be a growth spurt, hormone flux, stress, or a change in the weather that will whack out the medical management plan. The earth rotating around the sun—may whack out the medical management plan. Excitement over a new set of lego’s, an upcoming party, trying out for basketball- may whack out the medical management plan. So we stay alert. We pretend we are Marcus Welby MD and adjust insulin doses like we are changing our socks…and we pray. We pray that WE DON”T SCREW IT UP!

We pray he moves when we do an overnight check of his glucose level. We pray he wakes up in the morning. We pray that he will not be one more statistic that this disease ‘gets.’

We pretend. This is easy. We got this. He can be all, do all, and the world is his oyster. He believes, and that is our goal. He believes that all is possible—and we work to make that true.

For all the well meaning people, strangers mostly, who come upon me buying insulin at the pharmacy or glucose tabs at the grocery store—who speak about cinnamon cures and herbs from the South Seas—before you speak—remember this is my son. My son- who I would walk on hot coals for, lay down my life for, and absolutely take away this disease from him- if I only could.

If I had a dime, I’d use it to find a cure.